c*******u
发帖数: 12899 | 1 ☆─────────────────────────────────────☆
jiajia1982 (小样) 于 (Fri Feb 25 23:30:36 2011, 美东) 提到:
刚刚做完neurophychological test，结果是自闭症。
我的儿子3岁4个月，还只会说单音字，而且就说那么几个。和别人交流很困难，不爱看
电视，也不爱跟别的小孩玩。各方面的发展都严重delay。
医生推荐做 (Applied Behavior Analysis)ABA therapy，说这是目前治疗儿童自闭症
的最好的方法。可气的是公司的mental health insurance还不cover 这个ABA
therapy。可这个治疗要长期做，非常昂贵，自己很难负担。该怎么办？
真的要崩溃了。
☆─────────────────────────────────────☆
mitbbser1 (mitbbser) 于 (Fri Feb 25 23:33:14 2011, 美东) 提到:
你可以和学区联系, 学龄前儿童也都有免费的治疗.
☆───────────────... 阅读全帖 |
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l**********1
发帖数: 5204 | 2 Ding
plus
>
April 04, 2012
The New Genetics of Autism – Why Environment Matters
by Thomas Insel
>
Last week’s autism news was about prevalence. The CDC reported a 78 percent increase in autism
prevalence since 2002. This week’s autism news is about genetics—three papers in Nature describe new
genes associated with autism. For many people, these two stories seem contradictory or, at best, unrelated.
Increasing prevalence suggests environmental factors like chemicals and microbes changing over the... 阅读全帖 |
|
w*********s
发帖数: 2136 | 3 【 以下文字转载自 Parenting 讨论区 】
发信人: whiteclouds (/ 参考消息 /), 信区: Parenting
标 题: CDC to Study Vaccines and Autism
发信站: BBS 未名空间站 (Tue Mar 22 18:44:33 2011, 美东)
CDC to Study Vaccines and Autism
HuffingtonPost.com
David Kirby
Author/Journalist
Posted: March 18, 2011 05:46 PM
The Centers for Disease Control and Prevention wants to study autism as a
possible clinical outcome of immunization, as part of its newly adopted 5-
year research agenda for vaccine safety, the agency said on its website.
The CDC wi... 阅读全帖 |
|
w*********s
发帖数: 2136 | 4 【 以下文字转载自 Parenting 讨论区 】
发信人: whiteclouds (/ 参考消息 /), 信区: Parenting
标 题: CDC to Study Vaccines and Autism
发信站: BBS 未名空间站 (Tue Mar 22 18:44:33 2011, 美东)
CDC to Study Vaccines and Autism
HuffingtonPost.com
David Kirby
Author/Journalist
Posted: March 18, 2011 05:46 PM
The Centers for Disease Control and Prevention wants to study autism as a
possible clinical outcome of immunization, as part of its newly adopted 5-
year research agenda for vaccine safety, the agency said on its website.
The CDC wi... 阅读全帖 |
|
w*********s
发帖数: 2136 | 5 【 以下文字转载自 Parenting 讨论区 】
发信人: whiteclouds (/ 参考消息 /), 信区: Parenting
标 题: CDC to Study Vaccines and Autism
发信站: BBS 未名空间站 (Tue Mar 22 18:44:33 2011, 美东)
CDC to Study Vaccines and Autism
HuffingtonPost.com
David Kirby
Author/Journalist
Posted: March 18, 2011 05:46 PM
The Centers for Disease Control and Prevention wants to study autism as a
possible clinical outcome of immunization, as part of its newly adopted 5-
year research agenda for vaccine safety, the agency said on its website.
The CDC wi... 阅读全帖 |
|
w*********s
发帖数: 2136 | 6 CDC to Study Vaccines and Autism
HuffingtonPost.com
David Kirby
Author/Journalist
Posted: March 18, 2011 05:46 PM
The Centers for Disease Control and Prevention wants to study autism as a
possible clinical outcome of immunization, as part of its newly adopted 5-
year research agenda for vaccine safety, the agency said on its website.
The CDC will also study mitochondrial dysfunction and the potential risk for
post-vaccine "neurological deterioration," and convene an expert panel on
the feasibili... 阅读全帖 |
|
j*****d
发帖数: 787 | 7 哈哈。乐死了。人家要动物模型吧
自己补充性地再了解了一些，很多独立性工作哦
https://sfari.org/current-grant-recipients/-/asset_publisher/Qv9z/content/
the-role-of-shank3-in-autism-spectrum-disorders?redirect=%2Fcurrent-grant-
recipients
The role of SHANK3 in autism spectrum disorders
Mount Sinai School of Medicine
The relationship between genetics and autism is not always straightforward,
but some autism spectrum disorders are known to be caused by defects in a
single gene. These simpler cases give researchers the opportunity to cre... 阅读全帖 |
|
k***r
发帖数: 100 | 8 A few Chinese professionals (Physicians, Scientists, and experienced
parents) from ACMES (American Chinese Medical Exchange Society, http://www.acmes.net/) have organized a meaning event for professionals and families who are involved in Autism, Aspergers or PDD within the spectrum. If you know any parents (no matter they are Chinese or not), please help forward this event information, as it will benefit a kid and his families, and it may change parents' view and change a kid's life !!!
BIOMEDI... 阅读全帖 |
|
k***r
发帖数: 100 | 9 A few Chinese professionals (Physicians, Scientists, and experienced
parents) from ACMES (American Chinese Medical Exchange Society, http://www.acmes.net/) have organized a meaning event for professionals and families who are involved in Autism, Aspergers or PDD within the spectrum. If you know any parents (no matter they are Chinese or not), please help forward this event information, as it will benefit a kid and his families, and it may change parents' view and change a kid's life !!!
BIOMEDI... 阅读全帖 |
|
k***r
发帖数: 100 | 10 A few Chinese professionals (Physicians, Scientists, and experienced
parents) from ACMES (American Chinese Medical Exchange Society, http://www.acmes.net/) have organized a meaning event for professionals and families who are involved in Autism, Aspergers or PDD within the spectrum. If you know any parents (no matter they are Chinese or not), please help forward this event information, as it will benefit a kid and his families, and it may change parents' view and change a kid's life !!!
BIOMEDI... 阅读全帖 |
|
k***r
发帖数: 100 | 11 A few Chinese professionals (Physicians, Scientists, and experienced
parents) from ACMES (American Chinese Medical Exchange Society, http://www.acmes.net/) have organized a meaning event for professionals and families who are involved in Autism, Aspergers or PDD within the spectrum. If you know any parents (no matter they are Chinese or not), please help forward this event information, as it will benefit a kid and his families, and it may change parents' view and change a kid's life !!!
BIOMEDI... 阅读全帖 |
|
k***r
发帖数: 100 | 12 A few Chinese professionals (Physicians, Scientists, and experienced
parents) from ACMES (American Chinese Medical Exchange Society, http://www.acmes.net/) have organized a meaning event for professionals and families who are involved in Autism, Aspergers or PDD within the spectrum. If you know any parents (no matter they are Chinese or not), please help forward this event information, as it will benefit a kid and his families, and it may change parents' view and change a kid's life !!!
BIOMEDI... 阅读全帖 |
|
k***r
发帖数: 100 | 13 A few Chinese professionals (Physicians, Scientists, and experienced
parents) from ACMES (American Chinese Medical Exchange Society, http://www.acmes.net/) have organized a meaning event for professionals and families who are involved in Autism, Aspergers or PDD within the spectrum. If you know any parents (no matter they are Chinese or not), please help forward this event information, as it will benefit a kid and his families, and it may change parents' view and change a kid's life !!!
BIOMEDI... 阅读全帖 |
|
k***r
发帖数: 100 | 14 A few Chinese professionals (Physicians, Scientists, and experienced
parents) from ACMES (American Chinese Medical Exchange Society, http://www.acmes.net/) have organized a meaning event for professionals and families who are involved in Autism, Aspergers or PDD within the spectrum. If you know any parents (no matter they are Chinese or not), please help forward this event information, as it will benefit a kid and his families, and it may change parents' view and change a kid's life !!!
BIOMEDI... 阅读全帖 |
|
k***r
发帖数: 100 | 15 A few Chinese professionals (Physicians, Scientists, and experienced
parents) from ACMES (American Chinese Medical Exchange Society, http://www.acmes.net/) have organized a meaning event for professionals and families who are involved in Autism, Aspergers or PDD within the spectrum. If you know any parents (no matter they are Chinese or not), please help forward this event information, as it will benefit a kid and his families, and it may change parents' view and change a kid's life !!!
BIOMEDI... 阅读全帖 |
|
O******e
发帖数: 4845 | 16 Autism May Have Had Advantages in Humans' Hunter-Gatherer Past, Research
er Believes
ScienceDaily (June 3, 2011) Though people with autism face many challe
nges because of their condition, they may have been capable hunter-gathe
rers in prehistoric times, according to a paper published in the journal
Evolutionary Psychology in May.
The autism spectrum may represent not disease, but an ancient way of lif
e for a minority of ancestral humans, said Jared Reser, a brain science
researcher and doctor... 阅读全帖 |
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s*****e
发帖数: 6053 | 17 你说的这几个症状倒还是蛮像的，那你儿子中文好吗？如果说他中文可以交流，那估计
是英文让他感觉迷茫和frustrated。如果这样我倒是建议你可以让他先去华人的
preschool, 语言可以交流，增强自信心，至少这样等他大些再学英语，或许能够知道
怎样处理好自己的情绪和学习。
这学期我去perschool做observation，第一感觉这些孩子在学校好开心呀~~感觉像正常
孩子一样。我也有去autism班，发现他们跟老师也是有交流和玩耍的。不过大部分
autism的孩子都是picture learner, 所以孩子在吃饭的时候都是需要用图片和老师来
交流。而且大部分autism的孩子对灯光的要求比较敏感，都喜欢不要太亮的灯光。
autism本来就是disorder的一种，所以经常会很没有安全感如果不知道下一步要做什么
。不知道你儿子有这种状况吗？
我们上课的时候老师有次还说是不是现在的家长特别愿意lable孩子，作为妈妈的我是
有点不同意的，因为我们都希望孩子好好的，但是如果有症状我们应该及时查出并且治
疗。 给孩子作个检测吧，就算结果不如意，你们也不用担心，美国这边关于speica... 阅读全帖 |
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d***a
发帖数: 13752 | 18 http://www.autismspeaks.org/about-us/press-releases/autism-spea
Autism Speaks, a non-profit organization dedicated to increasing awareness
of autism and raising money to fund autism research, today applauded the
American Academy of Pediatrics for its release of two new clinical reports
urging early screening for autism spectrum disorder (ASD) for all children.
The AAP now recommends that all children be screened for autism spectrum
disorder twice before age 2 -- once at 18 months and once at 24 ... 阅读全帖 |
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s********r
发帖数: 663 | 19 这有些得Autism（自闭症）的小孩有个优点，这种人往往在某些方面有特异的长处，容
易成为什么“钢琴神童”或是“数学神童”什么的。
所以，你看一小孩个性极度自闭，跟人交往有问题，但父母老是吹嘘他/她是个什么“
神童”什么的，这可能就是个Autism（自闭症）患者。
但在中国人的文化里，当“神童”， 12 岁上大学，出名出人头地，比什么都重要。如
果，Autism（自闭症）能给小孩带来这些虚荣，可能家长还为自己的娃生来就有Autism
（自闭症）而自豪呢！
所以，有AUTISM的娃也没啥，
第一，作父母的要坚信自己的娃是“神童”；
第二，作父母的要讳疾忌医，死不承认自己娃是AUTISM；
第三，在家里硬楸娃，让他拼命跳级，搞他个12岁上大学。
这么早送他上大学了，做家长的得面子了，小孩跟人交往有问题的现象，也可以用年龄很
好地掩盖起来，这不就结了吗？这里子面子都得了。
这样一搞，还会让很多小孩没得Autism， 但也没成个什么“神童”的家庭气不过。
这不是证明得AUTISM是件好事，而不是病吗？ |
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n*****s
发帖数: 343 | 20 April is Autism Awareness Month, and to kick off events, the advocacy group
Autism Speaks is releasing results of its first online community survey on
livability.
The organization used the data to generate a list of places to live for
people with autism, reporting the places most often cited by respondents for
best availability of services and resources, including educational
offerings and recreational and medical services.
In the top 10 were, in no particular order: New York, Los Angeles, Chica... 阅读全帖 |
|
n*****s
发帖数: 343 | 21 April is Autism Awareness Month, and to kick off events, the advocacy group
Autism Speaks is releasing results of its first online community survey on
livability.
The organization used the data to generate a list of places to live for
people with autism, reporting the places most often cited by respondents for
best availability of services and resources, including educational
offerings and recreational and medical services.
In the top 10 were, in no particular order: New York, Los Angeles, Chica... 阅读全帖 |
|
w*******y
发帖数: 60932 | 22 I realize this is specialized, but it's worthy of mention if even one family
get use of it IMO so I am going to take the heat and post it
I will note up front, that this is the first try at this. While they have
made adjustments something like this has never really been done before so
you are more than likely to run into a kink or two. Even if it is just a
parent that overestimated their kid's response to the show (it happens )
Linky Dink to ticket services:
http://www.tdf.org/TDF_Landingpage.as... 阅读全帖 |
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s******y
发帖数: 28562 | 23 呵呵，我就不去趟这种浑水了。
我就是查文献的时候看到有的实验室已经在做PTEN在autism里面的功能，
觉得挺纳闷的。
就像你说的那样，大部分功能特别重要的基因（那些很多都是oncogene)，
在neuron 里面都肯定有功能的。
比方说我要是发个神经在纹状区把tubulin KO了，几乎也肯定能够产生
autism 症状吧？可是这么做有意义么？
SHANK3, 和Neuroligin 的意义在于他们是非常组织特异性的蛋白，
在基因上搞乱这两个蛋白后产生的形状主要集中在神经和行为上，
这个和autism 病人的特点一致。因为autism 病人主要是行为异常，
其他发育大致都还正常。
而PTEN这种蛋白，在自然情况下不管是以什么方式被搞乱（比方说基因
突变，或者mis-regulation)，其表型不太可能集中在脑部，所以不太可能是
autism 的致病原因。
在这个意义上来说，我觉得对SHANK3, Neurologin等几个post-synaptic
scaffold protein 的调控，才是最有可能的autism 的致病原因。 |
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a********a
发帖数: 3176 | 24 I've always been a believer in vaccine and suspected those blaming it for
autism were in to extract money from drug makers. Below is the newest
report.
Study Linking Vaccine to Autism Was Fraud, Journal Reports By THE ASSOCIATED
PRESS
LONDON (AP) — The first study to link a childhood vaccine to autism was
based on doctored information about the children involved, according to a
new report on the widely discredited research.
The conclusions of the 1998 paper by Andrew Wakefield and colleagues wa... 阅读全帖 |
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m****h
发帖数: 41 | 25 我在另一个版回应了一个帖子，在这里把我的帖子再发一次：
I am a licensed psychologist specialized in the diagnosis and treatment of
Autism. 搂主有几点讲的不大确切。Here is some basic information about autism.
If you have questions, please email me. I'd be glad to provide more
information.
Autism Spectrum Disorder (ASD)is a neurological disorder that has a strong
genetic component. However the etiology is not clear at this point.
大约50% 的患autism的人有智力障碍，有相当一部分患者没有语言功能。所谓“天才”
确实存在，但绝不是“autism"的代名词。在我的经验当中，这样的“天才”占极小的
比率，但是媒体都喜欢对他们进行报道，所以有的 |
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o******w
发帖数: 3262 | 26 【 以下文字转载自 Pharmaceutical 讨论区 】
发信人: Blazia (乡村熊), 信区: Pharmaceutical
标 题: Take this, "whiteclouds"!
发信站: BBS 未名空间站 (Wed Jan 5 20:04:58 2011, 美东)
From now on, stop posting all those junks onto this board.
==========================================================
http://www.nytimes.com/aponline/2011/01/05/health/AP-EU-MED-Aut
Vaccine-Autism Study Was Fraud
By THE ASSOCIATED PRESS
Published: January 5, 2011
¶ Filed at 7:50 p.m. EST
¶ LONDON (AP) — The first study to link a childhood va... 阅读全帖 |
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a**y
发帖数: 118 | 27 http://www.prnewswire.com/news-releases/ongoing-investigations-
Well-known Whistleblower Calls for Withdrawal of British Medical Journal
Article Alleging Fraud
AUSTIN, Texas, Nov. 10, 2011 /PRNewswire/ -- The Strategic Autism Initiative
(SAI), an autism research foundation, reported today that an ongoing
investigation into the allegations of fraud against Dr. Andrew Wakefield
concerning a paper published in The Lancet in February, 1998 is being
conducted by an internationally respected scientist... 阅读全帖 |
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s****p
发帖数: 66 | 28 我不知道楼主是真的幽默, 还是在调诳有AUTISM小孩的父母.
(1)你的标题: 来，猜猜我娃是不是autism啥的吧
(2) 你的心情: "明天就要带娃去做盼望已久的development assessment了，这个机会
是争取了半年才得到的，偶现在的心情就像小时
候参加比赛一样兴奋。。。。"
autism不是一个fashion也不是一个儿戏,它是一个患病小孩日益增加的疾病(起码在美
国). 如果你的儿子真的是AUTISM小孩,你会生活在一辈子的痛苦中.
如果你仔细看AUTISM小孩的父母回答的内容: (1)他们没有擅自判断声称你的小孩就是
ＡＵＴＩＳＭ （２）如果小孩有发育明显障碍，一定要严肃对待，赶快做专业医生检
察，而不是浪费时间．
如果你的描述儿子是真，我觉得你应该联系当地的regional center而不是通过你的私
人保险． regional center会在45天派各种专业医生来做评估．如果他们判定需要服
务，所有的theropy都是免费．
希望你的小孩不是ＡＵＴＩＳＭ． |
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s******s
发帖数: 13035 | 29 【 以下文字转载自 Parenting 讨论区 】
发信人: shakuras (doskey), 信区: Parenting
标 题: Retracted autism study an 'elaborate fraud,'
发信站: BBS 未名空间站 (Wed Jan 5 20:23:39 2011, 美东)
发信人: goog01 (10^100), 信区: Biology
标 题: Retracted autism study an 'elaborate fraud,'
发信站: BBS 未名空间站 (Wed Jan 5 20:04:57 2011, 美东)
Retracted autism study an 'elaborate fraud,' British journal finds
http://edition.cnn.com/2011/HEALTH/01/05/autism.vaccines/?hpt=T |
|
e*e
发帖数: 6808 | 30 鉴于我家宝宝说话迟(就现在也没几个词,还很不清楚)
走路像小跑
有时不听命令
......
今天体检时我特地把这个autism的事情又跟ped谈了谈.
先撇开我家宝宝情况不谈,说说关于autism的及时发现吧
我想, 美国这边对autism的重视大家还是能感觉的到的
不知道其他地方的ped怎么样, 我们的ped自从一岁开始会给ASQ
http://eip.uoregon.edu/research/asq.html
这个questionnaire也可以网上完成. 填完这个表,其实你能对自己宝宝的发展情况有个
大概了解.
如果发现某个方面有比较大的delay, 也可以及时寻找professional的帮助
今天是18个月的check up. 除了交上次的ASQ, 拿下次的之外, 还有专门一张纸的调查
填完, 我就知道基本上是针对autism的
具体的我记不得了
大概有就是: 有需求的时候是不是找家长?
会不会吸引大人注意, 分享他的喜好?
eye contact
对你的行为有没有兴趣, 模仿, 交互...
对镜子里的自己有兴趣否?
对娃娃有兴趣否?
我想, 大家可以问问ped, xdx的人 |
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d*****y
发帖数: 56 | 31 我觉得，一方面你不要太担心，因为老美学校很多学生是被over diagnosis,
Autism 这个却是和基因遗传有点关系，我表哥的女儿有轻微的Autism 是源于她舅舅有
很严重的自闭症。
另一方面，目前没有很科学的诊断标准，到底什么是Autism,而现有的所谓标
准，也把Autism 分成5大类，每一类都症状不同，比如有的没有语言障碍，没有智力差
别，而仅仅是在social communication 上有困难。所以我一直觉得对于怀疑有这方面
障碍的孩子，行为纠正加上爱心是最最重要的方法，建议去搜索一些这方面的网站。
祝福你和你的孩子 |
|
p********y
发帖数: 146 | 32 MRI没害，但那东西太吵，而且不能动，在里面呆着不舒服，不知道他们怎么固定小孩。
和楼上一样，我感觉也有点怪。我不能想象MRI的结果能在任何方面有助于autism的治疗和恢复。
查到一篇关于autism脑结构的综述
Brain anatomy and development in autism: review of structural MRI studies
Brambill et al.
Brain Research Bulletin
Volume 61, Issue 6, 15 October 2003, Pages 557-569
在文章最后提到，
In conclusion, despite a growing number of quantitative MRI studies, few
robust findings have been observed. Structural abnormalities involving total
brain volume, the cerebellum and, recently, corpus callosum have bee... 阅读全帖 |
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c****6
发帖数: 326 | 33 LZ在哪个州，你可以在网上察一下所在州的Child Find这样的机构，他们一般会协助学
龄前儿童接受评估和相应的语言和行为治疗。
另外，小孩在 "joint attention" 和 “social referencing"方面表现怎样？
joint attention：如果你指着一个地方，说“XX,快看！＂他会顺着你指的方向看过去么？
social referencing: 如果你在对一个事件或者事物做出兴奋，吃惊或者其他表情，他会观察你然后模仿你做出相似的一定表情么？
他在家中和特别熟悉的人进行appropriate social interaction么？如果只是在某些特殊环境有障碍，应该不是autism，可能是语言方面的delay引起的社交方面的障碍。
小孩有没有对什么事情特别着迷？以前有接触过的小孩with autism 对旋转的车轮子特别着迷，或者可以不知疲倦地一直盯着打开关上的门， 或者电视机上流动的字幕。
另外，强烈同意楼上之前大家的看法，赶快找专业的人进行诊断。即使他没有诊断成autism,他有可能符合以developmental delay来接受早期特殊干预的标准... 阅读全帖 |
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r****y
发帖数: 445 | 34 先说一句,其实mild autism没那么可怕.
我家老大也是从小(4,5个月的时候我就发现了)不让人碰手, 1岁多还不会跟人拜拜,2岁
的时候虽然会说很多话,但是全是故事或者歌词, 或者label物品.很少用语言告诉我们
他的要求或想法. 但是他和人对视没问题, 很爱笑,喜欢和大人玩躲猫猫之类的.
两岁的时候我跟儿医说了我的担心, 也是被推荐去作screen,同时和early
intervention的联系开始早期干预. early intervention说他确实有delay,主要是语言
方面.因为某些客观原因,他接近三岁才做了screen,确认是mild autism. 三岁开始上
special education program.
现在上了快一个学期了,确实有很大进步.他上的也很开心,那里的师生比很低,老师对孩
子们也非常好上心.我现在很庆幸及时送他去了这里.
孩子两岁的时候我也很纠结这个label的问题,后来想开了, 不管怎么label,孩子还是这
个孩子,作为家长,我们除了自己要努力教育引导孩子, 帮他争取最大的社会资源也很重
要. 不知道其他地方的情况,在我们这里, 这... 阅读全帖 |
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b***t
发帖数: 1104 | 35 To your first question. The answer is yes. The seemingly explosion of autism
cases is due to recognition of autism as a clinical disorder. It took off
in late 80s to early 90s. Those kids that were diagnosed back then are now
entering their early twenties. That brings about a lot of social problems.
Before age 21, government funding covers their public education, special
need schooling and of course medical care. After 21, they will be on their
own. If the family has limited means, these support... 阅读全帖 |
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p****p
发帖数: 3360 | 36 对autism了解很少。我一直有一个疑问，我们普通人说的性格内向不善交际是不是看起
来就是象autism? 或者换句话说，100个人按照性格从内向到外向排队，最内向的是不
是autism，或者倾向于autism？ |
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y**w
发帖数: 516 | 37 And his experiment about the connection between vaccine and autism was
totally a false.
for details:
Autism Doctor Loses His Medical License; Now Let's Talk About How False
Vaccine Beliefs Hurt Kids
It’s good that Andrew Wakefield, the author of a discredited “study” in
The Lancet of just 12 children that alleged a connection between vaccines
and autism, has been banned from practicing medicine in the U.K. Now we can
all stop calling him a “doctor” and start a debate about whether he’s
actually |
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a****e
发帖数: 428 | 39 Check more relevant organization, rather than bbs here.
http://www.autism-society.org/
http://www.myautism.org/
There usually are useful information, groups, support program.
Sadly to say, the awareness of Autism is still low. Early intervention is
important, but that means before 2 years old. Autism develops between 12-24
months. It's hard to detect if you don't pay extra attention. But it's not
too late yet. You need to have the confidence that your baby will recover
from it. |
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t*********l
发帖数: 778 | 40 对了，我那个朋友的小孩是确诊为fragile x syndrome，这是很多autism发病的原因。
目前没有治愈方法。在这种情况下，很多人提出了各种各样treatment的方法，象减少
牛奶，多吃vb和镁等等。google一下就能发现。
fragile x syndrome是由于x染色体基因序列过长（所以叫fragile x )而引起的。
autism男孩子发病率远大于女孩，是因为男孩是xy，如果那个x 出了问题，就没办法了
。女孩是xx,即使一个x有问题，另一个x还能中和一下异常。
他们是在国内确诊的，应该诊断不是太难，但是国内早期干预的机构和手段都很缺乏，
所以现在孩子（已经7岁）没能得到很好的治疗。在美国，这方面比中国好了很多，
autism小孩的家人应该多加利用。
孩子在6岁之前的时间是非常宝贵的。6岁之后效果就不明显了。 |
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t*x
发帖数: 35 | 41 My son is about the same age of your son. He has been diagnosed with autism
since 2.5 years old and has been receiving individualized trainings since
then. I know you are very worried now, which is understandable as it is not
something any parents would expect their children to have. But given that
your child has been diagnosed with autism, it is more advisable to transform
your worries into actions:
1. Read more about autism, through books/articles/web_sites in English and
Chinese. It is import |
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D**********R
发帖数: 25234 | 42 谢谢你的建议先，我们现在做的初步评估就是通过儿医申请的加州的一个公益机构做的
，现在要走更专业的医生，等保险
批也就是2－3周的事，同时我也在打regional center的电话中。
我并没有调侃谁，我觉得我娃不是典型的autism，但是有些指征，而autism应该是个谱
系（不知道是这个词不），还有比
较轻的，如asperger类的，怀疑我娃落到了某一种内，所以用 autism 啥的，来代替。
我兴奋是因为几个月的疑问就要有个初步的解答，而且进入了干预流程对我娃只有好处
没有坏处，换句话说，不是因为诊
断出来才得病的，如果有病，那是早就客观存在的，诊断出来是看到了希望，迎接挑战
就是，难道不应该摩拳擦掌吗？
让大家猜，是因为来抱怨自家娃的家长似乎很多，但是大家安慰一通往往就over了，估
计大部分也没啥问题，我这个是开
始进入评估流程了，给大家来个直播连载，分享下经验教训，顺便让大家发挥下准儿童
心理学家（大部分家长都在朝这方
面努力呢吧，呵呵）的特长来猜猜看。 |
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w*******g
发帖数: 9932 | 43 wow. What a great summary!
I can't imagine the problems you are facing. I always worry about Autism and
it just seems to be the biggest thing parents can encounter. My son went to
a
home daycare provider who also took care of a few boys with Autism. These
boys
are in elementary schools already but they can't be left alone after school.
When I go pick up my son, these boys either don't talk to me or they would
make
some comments that do not make sense at all.
I also had a roommate with autism whe |
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s*******a
发帖数: 230 | 45 Update: 问了一下作scan的nurse说会给一种药，让孩子昏昏沉沉，不至于睡着，但是要晕好几个小时。和Ped说scan主要排除有没有脑内部受伤之类的。我记起他小时候3、4个月翻身的时候从床上摔下来过，立刻看了医生说没事。还有一次13个月的时候在院子里从两阶台阶上摔下去了，但是我都没在场，不知道具体的伤势和情况。会造成脑震荡么？心里很毛又很纠结。
Ped要求给孩子做MRI Scan，因为他有一些Autism的features，但是有不太像Autism。
Ped说因为是magnetic field而不是radiological,所以很安全。我还是担心孩子这么小
，不管什么磁场射线场是不是都不合适？还有这个检查对Autism的诊断必要么？是不是
一定要做呢？
请有经验的说说？
Thanks！ |
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b*******s
发帖数: 636 | 46 我大儿子3岁半了，感觉有很多autism的特征。
1，说中文很慢，感觉就是一个字一个字往外挤似的，而且只能表达一些简单的东西，
所以常常因为心里有事说不出而哭闹。关于英语，从1岁9个月到2岁7个月都在上
daycare,期间只能说一些简单的单词。然后因为跨州搬家和回国还有potty training就
没上。现在刚上蒙校一个月，除了说很少的单词外，只能说"My backpack, My train"
之类的。
2， 不和小朋友交流，不和小朋友玩。至今在幼儿园还还是自己玩。像是活在自己的世
界里。
3，很容易情绪失控。
4，很少和人对视。
我做了一下网上的autism screening quiz， 发觉他符合15个autism的特征。我们之前
也就这个问过他的儿科医生，被否定了，理由是我娃看起来很Happy。但是我越来越不
敢肯定。
该给娃去做一个专业的检测吗？我想听听大家的意见。 |
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d***a
发帖数: 13752 | 47 正好前些天我看到一个报导，说最新的研究成果是Austim能在很小的时候
诊断出来，并且早期治疗效果会有很大的不同。网上查一下，找到相关的
一篇（不是我看到的），给楼主参考一下。我看到的一些新闻，现在美国
政府在Autism early detection上投钱很多，共识是越早检测越好。
http://psychcentral.com/news/2011/10/14/early-detection-of-auti
New research is finding symptoms of autism spectrum disorders in babies as
young as 12 months, raising the possibility that earlier intervention may
even stop them from developing the disorder, according to an autism
researcher at Michigan State University. |
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d**s
发帖数: 2 | 48 感谢puppyfung为我发帖，我也在这里再详细介绍一下我儿子的情况：
我儿子现在周岁 3岁8个月（虚岁5岁），在preschool上学，平时我们叫他名字不会搭
理，一定要叫很多次才有反应（确认没有听力问题），在学校也很难跟其他小朋友玩到
一会儿，但是机械记忆能力很好，三字经，唱歌，讲故事都没什么问题。 我们自己在
网上做了autism的screening，说是high risk on autism.
现在我们想先给他做一个Autism的assessment， 由于他只会讲中文， 最好是会讲中文
的医生。 另外我也已经申请了school district的special education assessment, 那
个问题不大。 |
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k***a
发帖数: 2400 | 49 也有研究说，太聪明的父母生的小孩，得autism比例高 - Genetic Link with
Analytical Minds and Autism。还有得autism的大都是男孩。 |
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